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  • ABOUT US
    • Board of Directors
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    • What is Chiari?
    • Comorbidities
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    • I Have a Voice
    • I'm Listening
  • Get Involved
    • Staff and Volunteers
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  • More
    • Welcome
    • ABOUT US
      • Board of Directors
      • Scientific Advisory Board
      • Legalities
      • Our Mission
    • Information
      • What is Chiari?
      • Comorbidities
      • CNS CM Guidelines
      • Chiari Specialists
      • Center's of Excellency
    • Our initiatives
      • I Have a Voice
      • I'm Listening
    • Get Involved
      • Staff and Volunteers
      • Donate
      • Facebook Group
      • Facebook Support Group
  • Welcome
  • ABOUT US
    • Board of Directors
    • Scientific Advisory Board
    • Legalities
    • Our Mission
  • Information
    • What is Chiari?
    • Comorbidities
    • CNS CM Guidelines
    • Chiari Specialists
    • Center's of Excellency
  • Our initiatives
    • I Have a Voice
    • I'm Listening
  • Get Involved
    • Staff and Volunteers
    • Donate
    • Facebook Group
    • Facebook Support Group

I have a voice!

Desiree talks about the importance of advocating for your self and finding the right doctor for you.

Jamie shares her experience of finding someone to be able to lean on when no one else understands. We all need a chiari buddy to help get us through this maze of life.

Chelsea found out about her chiari while starting collage. She discusses the impact on life both with her education and health.

Danielle is a dedicated wife and mother who talks about the navigation of life at home and within the medical system in the UK.

Janelle is an incredible artist who is wanting to channel her creativity into something beautiful that can help others like herself.

Crystal is a mom of three fighting everyday to see the sunshine and to bring joy to her children through the struggle of Chiari Malformation and IIH.

Rick talks about how life can be with out surgery! He talks about how you can have a normal happy life with Chiari with out surgery.

Doug gives Crazy by Chiari another meaning! He enjoys his life to the fullest including going on rollercoasters and deep sea fishsing!

Erica knows just how much we need a support system in our time of need! Sometimes it doesn't look like what we think it will. We aren't as alone as we think!

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